Tuesday, January 3, 2017

Death Valley

That Moment When you Realize
You Walked Through
The Valley of the Shadow of Death
Death Valley, San Diego and Arizona
March 2014


Maddie 12
Kier 10
Cora 7

I think everyone has that “the time I got sick on vacation” story. But few people have an “ I got sick on vacation” story like Cora. Cora's experience is the type that makes time stands still and every other life event is then judged as “before our trip to Death Valley” or “after our trip to Death Valley”. In fact it is disturbingly prophetic that on this occasion we had chosen Death Valley as one of our destinations.

Cora had started to show signs of being ill mere hours before our trip began. I'd picked the kids up from “Friday School” at three. I remember on the the way home I asked Cora if something had happened at school because she was uncharacteristically grumpy. She (grumpily) told me that no nothing had happened, and she was fine-- thank you very much! I left it at that, hopping that maybe she was just a bit tired after a full day of school and her normal sunny disposition would return by morning.

As is typical with out spring trips, the weather was in charge of our departure date and time. We had planned to leave on Saturday, but in order to avoid a bit of weather, we instead headed for the airport straight from the school.

Our destination (Death Valley) lay to the west, and the incoming weather, lay to the south. So our route the first night took us over the mountains in a meandering sort of way as we avoided the tallest of the peaks. We spent the night in Grand Junction and continued on the next day. By morning, the clouds were starting to push in and we again flew a circuitous route as we made our way to Las Vegas where we met up with Bret, Dawn and Lance. They had managed to pick a night when all but one room in all of Sin City was completely booked up -- hard to believe that can happen given the number of huge casinos there!

From Las Vegas, we flew caravan style to Death Valley in California. Death Valley is a bit odd for a National Park. For one thing it is very remote. While most National Park are far from metropolitan areas, Death Valley takes it to such an extreme that it is almost a ghost town! Actually there are a number of ghost towns right in the park. In fact we rented Jeeps and visiting them was a primary form of entertainment during the few days we were there. In addition to touring ghost towns, we also made the trek to see “The Racetrack” where we watched rocks stand still, but wondered about the tracks they had left in the dry cracked mud. (The mystery has since been solved. Two brothers video taped the rocks, pushed by strong wings, sliding across slippery muddy ice). And to help combat the high heat in Death Valley, we made sure to enjoy some ice cream everyday. In retrospect, ice cream was not such a good idea, but at the time it seemed like the thing to do. We even got buzzed by some really low flying fighter jets that appeared out of no where while practicing military maneuvers in the air space over the desert.

All the while Cora continued to be grumpy and tired. What's more she started drinking ridiculous amounts of water, and consequently needing to find bathrooms more and more frequently. At first we joked that Cora was taking the signs in the bathroom that warned of the importance of drinking water and the risk of dehydration too seriously, but it was becoming clear something was not right. In fact several times a night we would have to crawl out of the tent and find the campground potties-- or eventually a bush or two. The one bright side of this was that one night, as we stumbled back to the tent in the dark, our flashlight beam shown bright on an adorable desert Kangaroo Rat. He was about the size of a small guinea pig, had big bright eyes, huge hind legs and a frizzy poof at the end of his tail.

By day three I was beginning to suspect Cora might have Diabetes. I had taken an Anatomy and Physiology class at the the community college the year before and the list of symptoms played through my head (in Latin no less) like a checklist on “loop setting”: polydipsia, polyuria, diabetes insipidus, diabetes mellitus.... But what my medical terminology failed to give my was an understanding of just how much danger my little girl was in. And so while I continued to fret in the desert, far from medical help, I naively believed that we could finish our trip and take Cora to the doctor's office when we got home.

Stop two on our multi-destination trek was San Diego. We briefly parted ways with the Lowells. They headed to Catalina Island and we went straight to San Diego.

The flight into San Diego was quite an interesting contrast. In less than 45 minutes we went from a flat dry desert, below sea level elevations and a humidity of less the 25 percent, to climbing over a snow covered mountain range, and then descending through a cloud bank into the ocean side city of San Diego, where the humidity was near 100 percent.

Despite having finished his instrument flight training more than a year before this trip, it was Joel first actual instrument landing. Once we crossed over the Laguna Mountains a thick layer of clouds hid the valley making it impossible to tell if the city even existed beneath. We had anticipated the clouds and Joel had opened an instrument flight plan before we reached the mountain ridge. We continued to fly above the clouds for about another 15 minutes. When it was time to descend through the clouds both Air Traffic Control and the airplane chose to test Joel's skills. The autopilot was having some trouble maintaining a heading and then the Air traffic controller weaved Joel all around the cloudy sky as he directed him through the busy air space. But we popped out the bottom of the cloud layer right above the runway and Joel made a beautifully smooth landing.

We spent two days in San Diego. Without the dry heat of the desert to contend with, Cora perked up a little. We went to the beach, found a tide pool to explore and visited the Birch Aquarium at Scripps Institution of Oceanography. The day before we left San Diego, we met up with the Lowells at the San Diego Zoo with the single minded purpose of seeing the Pandas. We have been to the free National Zoo in Washington DC several times to see the famous (fabled?) pandas, and every time the illusive pandas have managed to avoid us!

When we met up with our friends, Bret asked us what we wanted to see first. Joel quickly announced that the Shaklee Family had just spent $250 to see Pandas, so we demanded to see Pandas! After finally having achieved our greatest life goal we also saw several other animals. Most notable were the precious and extremely lazy Koala Bears.

Looking back at the pictures it is painfully clear that Cora was indeed very sick; she was pale and skinny. But she was also drinking less water and visiting the bathroom less and I grabbed on to these as good signs.

Our next vacation stop was Yuma Arizona where Joel was going to join Bret for part of a formation flying clinic. Cora's symptoms reemerged that day and on the short 30 minute flight to Yuma Cora was both begging for water and complaining about the lack of a potty on the airplane, despite the fact that everyone had visited the restroom moments before take off.

In the morning Joel and Bret went flying while Dawn and I took the kids to the Hotel pool. We had no transportation and really there was not much else to do in Yuma Arizona. This activity led to a new stress! Someone has failed to to turn off the overnight pump on the pool cleaning system. The kids were playing a game of Marco Polo when Kier got too close to the vent and the suction was strong enough that it held Kier under water and against the wall for several seconds. At first, when the kids ran over to tell us that “the pool had sucked Kier in” we thought that they were over reacting to the light current that is always present in a public swimming pool. Then he turned around and we saw the 3 inch perfectly round deep purple bruise already forming on Kier's back. With my heart in my throat, we went to talk to management, who realized what had happened. They turned off the pump, apologized several times and comped us for the nights stay.

So, between that and the fact that I had finally had a chance to google the list of Latin words that were running an in ongoing loop in my head, was more than a little shaky when we got into the shuttle to head to the airport to meet Joel.

From Yuma, we made the short jump to Phoenix where we were staying a at my parent's vacation condo for a few days. I did wonder if we should just head home. But Phoenix was a short ½-hour trip and home was many hours away. Besides it was already late in the day.

The next day things really went downhill. Cora was once again constantly thirsty and in need of a bathroom. At lunch with some family friends, Cora vomited. We said hasty good-byes and went back to the condo where Cora took a long nap and I noticed her breathing become shallow. I once again googled “Diabetes Onset” and finally came across the article that convinced me it was time to act. This time, at the top of the search list was the personal story of a mother whose daughter ended up in Coma at type one diabetic onset. It was easy to see reflections of Cora's symptoms in this families personal account. Wordlessly, I handed the ipad to Joel. I don't think he even finished the article before he was on the phone trying to figure out where we needed to go to get help.

In the end we didn't quiet get it right. We went to the first hospital that we found and it turned out to be the hospital that specialized in adult trauma. They didn't even have a pediatric doctor on staff! This caused a little hiccup in treatment as Cora had to be transferred to the Children's Hospital. Still the staff at this hospital was wonderful. They got us back to see the Triage nurse quickly. That conversation went something like this:

Nurse:” so why did you come in tonight.”
Me: “I think my daughter has diabetes.”
Nurse: ”Has she been diagnosed with diabetes.”
Me: “No, that's why we are here.”
Nurse(already grabbing a blood sugar meter): “What are her symptoms?”
Me:” Well, she had been really thirsty” (nurse pokes Cora's finger and squeezes out a drop of blood) “and going to the bathroom a lot” (blood sugar monitor alarms) “and..” (nurse is already picking up phone and dialing) “she vomited at lunch today, and-”
Nurse(into the phone): “we have a pediatric type one diabetic onset. We need a room and IV STAT.”

And that was that. That was the moment our family “life clock” hit reset; the moment we realized we had “walked through the valley of the shadow death”.

The next three days are a blur. Cora spent three day in pediatric ICU. We learned the real information about diabetes. The stuff beyond Latin words and symptoms of onset. We learned about glucose and insulin and the risks of too much of each. We learned about counting carbs and giving shots. Joel and I took turns sleeping at the hospital and my parents flew in from Colorado to stay with the kids.

We also had to figure out how to get everyone (including the airplane) home. We decided we were not comfortable taking Cora in the Saratoga. We would be flying over some remote areas and might not have easy access to medical help. So Joel and Kier and Maddie flew out in the Saratoga and Cora and I went by commercial airline. This made for some stress of it's own. We literally ended up getting discharged from the hospital with barely enough time to go straight from the hospital to the airport. I worried about the process of making it through security with the various needles and bottles of insulin and juice boxes and glucagon pen. As it turned out this was not a problem at all. Cora still had various hospital bands and whatnot on so she was given special treatment including a personal assistant who pushed her in a wheel chair all the way to the gate.
The problem arose when we reached the gate and got ready for the lunch that Joel had carefully packed and calculated and recalculated the carbohydrate for. You see, we were discharged from the hospital with the expectation that we would attend extensive training classes the next day at our own Diabetes Center. So the hospital had just trained me for the basics. They were careful to go over the emergency procedures for what to do if her blood sugar dropped to dangerously low levels-- but the forgot to instruct me about really high levels. And when I pulled out the glucose meter for lunch it registered a really high number. When I called the hospital, they informed me that because Cora had already been discharged they could not legally give advice as to what I should do. I frantically search for the phone number for the Denver Diabetes Center. Eventually I found it, but when I called I was informed that our assigned doctor was on rounds at Children's Hospital-- he would call me back as soon as he could. All the while the departure time was ticking nearer. Fortunate for me the good doctor did indeed call me back within minutes of my leaving a message. He calmly talked me down off that wall and told me it was okay for Cora to eat, I would just need to give an extra dose of insulin to bring the blood sugar down. This sounded like a horrible idea to me-- I had visions of plummeting blood sugar, convulsions and all the other horror I had heard of, all happening in a airplane 30,000 feet in the air. But the doctor seemed sure and he was right. We gave the shot, Cora ate her lunch, and the short flight went smoothly. Once we arrived my mother in law picked Cora up at the airport. The rest of the family had a rather bumpy flight home, but made it home shortly after we did.

The next day we attended classes to learn the ins and out out diabetes care (including dealing with high blood sugar) and began learning to live our new normal.

Cora, 3 days out of the hospital and much happier
I'll be honest with you; I am not one of those people who believe “every thing happens for a reason”, but I do believe there are lessons we can take from every thing that does happen to us. And I believe that everything that happens to us changes us. And I also think that many of the experiences we have had in the airplane—everything from engine trouble to delayed departures and unplanned destinations-- are what give us the fortitude to deal with the greatest emergencies in life.

Sunday, January 1, 2017

The Moment When You Tell the Emergency Room Doctor “Wait, there's More”


East Coast Trip
Maddie
Kier
Cora
Laura 15


While our trip to the Emergency room in Phoenix was certainly the most dramatic, it wasn't our only vacation that was interrupted by a visit to the emergency room.

Our trip to the East Coast started out benignly enough. We even brought our 15 year old niece, Laura, with us for this adventure. The impetus for the trip was to celebrate Joel's half sister Kelly's birthday. The family was meeting in Fredricksburg Virginia for a weekend of birthday festivities.


The trip to Virginia was without a hitch. We picked Laura up in Greeley, made a quick stop in Pioneer Village in Nebraska, then we head to Illinois for the night. Everyone dipped their toes in the Mississippi River and admired the River Paddle-boat. The next day we finished the trip to Virginia. We ended up flying high which meant a steep and bumpy decent, which subsequently meant some upset tummies. But over all, it was an uneventful trip considering the distance we covered in two days.

We enjoyed spending time with family, celebrating Kelly, eating yummy food and taking in the rich Civil War history of Fredricksburg.

We even managed to meet my brother, Brandon, in Washington DC for a day of Capital City Culture. We made our requisite trip to the National Zoo where we, as usual, failed to see the Pandas. Unfortunately, the weekend we were there happened to be the peak of Cherry Blossom season. While this meant that Washington DC was at the height of its beauty, it also meant that there were people everywhere! In fact I think this is the trip that Joel declared in no uncertain terms that he would never walk the National Mall again.

From Washington DC, we headed to Colonial Williamsburg, Virginia. We love living history museums. In fact one year the kids and I volunteered at our local prairie living history museum. We spent several days that summer wearing way too many layers of clothes. The girls and I sweated in the kitchen helping cook stew and cookies in the gigantic cast iron wood burning stove, while Kier in turn sweated as the blacksmith's apprentice, pumping the big bellows to keep the fire hot enough to bend metal. ---And we loved every minute of it. All of which is to say, that Williamsburg, the undisputed queen of living history museums, was our kind of place!
It seems to me that there was a swimming pool in the hotel we stayed at that night, and I believe that was most likely the source of the crud that afflicted Maddie the next day.

Whatever the cause, the next day Maddie woke up with her eyes glued shut with eye discharge. Ugg! We used a clean wet washcloth to wipe it away (my apologies to the housecleaning staff), and continued on our way down to the pan handle of Florida.

Maddie's eye continued to weep green gunk throughout the day. It was the worst eye infection I have ever seen! At one point Maddie wiped the discharge from her eye and then turned to her cousin Laura to ask if she got it all. Laura's face contorted in a look of horror.

We were staying with Joel's Aunt and Uncle in Florida, and they had arrived at the little municipal airport in time to watch us land. They even videoed the landing (and the go around)which was fun because they also caught the commentary which proved that the go around looked as exciting as it felt. The trees along the sides of the runway causes the winds to tumble right as we were about 20 feet above the runway. Joel quickly pushed the throttle forward and we did a quick “go- around”. Then we had a few seconds conference as to what to do next. In addition to the paved runway, the airport had a grass runway that was in a more favorable orientation to the winds. The problem was, the club has a “get permission before landing on a grass runway” policy. In the end we decided the club would prefer a grass landing to a folded up airplane.

The second attempt-- this time onto the grass runway-- was smooth and pillow soft. In fact it was so pillow soft that Joel was afraid we might get stuck in the spongy Florida grass!

By this time, Maddie not only had a goopy eye infection, but she was also reporting an ear ache as well. We asked Joel's family about near-by emergency rooms. They didn't recommend the nearest hospital but it was quiet a bit closer then the next nearest one. We figured it was pretty clear what the problem was, surely any old doctor could diagnose a little conjunctivitis. Turns out, this was a bad call!
For one thing, it took forever! At one point I went to ask the front desk when we could expect to be seen and was told it could be awhile because the emergency room doctor was across the street at a different medical center. Ummm, what? The emergency room didn't have a doctor in the building???

Once we did finally see the doctor, he stood in the doorway, about 15 feet away from Maddie, and from there diagnosed her with an eye infection. And then he started to walk away! Wait! I called out, I think you should check her ears too (and maybe her throat, and heart and lungs like a normal doctor-- but I decided not to push it). In the doctor's defense, I will admit that you could have been in the next town and still seen that Maddie had an eye infection!

In the end she was given a prescription for antibiotics to treat an eye infection and an ear infection. The good news was that once she started on the antibiotic she cleared up quickly and was ready to hit the beach the next day. The next day we made the mistake of applying spray sunscreen on the windy beach and it all blew away leaving everyone (and Maddie in particular) with horrible sunburns, but at least that didn't require an emergency room visit. And we learn that emergency room recommendation are best taken to heart!